MORE SEMI GOOD NEWZ

WELL I GUESS I'LL START BY GIVING YOU ADRIAN'S CURRENT UPDATE HE IS UP TO 39ML/PER HR FOR 24HRS HIS ALL TIME HIGH (YAY)!!! WE INCREASE 1CC EVERY OTHER DAY WE ARE STILL GAINING WEIGHT AND GROWING WELL (YAY) HE IS CURRENTLY ON A NICE AMOUNT OF MEDICATIONS 1. PREVACID 2. PHENOBARBITAL 3. REGLAN 4. MYLICON 5. ERTHYROMICIN I THINK THATS ALL OF THEM HE STILL VOMITS HIS USUAL NO WALKING OR CRAWLING WE HAVE JUST STARTED TO GET OUR EARLY INTERVENTION PROGRAMS STARTED WITH ADRIAN GOING BETWEEN LA AND PHX HE NEVER GOT THE PROPER THERAPY WE ALSO HAVE SEVERE ORAL AVERSION (ANY ADVICE WOULD BE GREATLY APPRECIATED ON THIS ISSUE)
FEEL FREE TO EMAIL US AT MZLINSY89@YAHOO.COM

GREAT NEWZZZZ!!!!!!!

Soooorrry I havent blogged in awhile but we have been working extremely hard to get up to our goal were not there yet but were working our way up at the moment we are on 30cc an hr Adrians all time high!!!!! We try usually everyday to get one small solid feeding in a day he doesnt always like this but oh well!!haha I am litterally harrassing the early intervention programs because he is still not crawling or walking even though i work with him everyday that is the most frustrating part when your working soo hard and not getting any progress !!!!! Well Thanxxx To All Of You Who Read This!!!!!!!!!!!!!!!!!!!!!!!!!

SURGERY UPDATE

WE ARE STILL IN L.A ADRIAN HAD HIS SURGERY 2 DAYS AGO AND HE IS DOING BEAUTIFULLY THEY FOUND A FEW SMALL KINKS BUT NO REASON TO PUT IN AN OSTOMY HE HAS THROWN UP TWICE BUT THE DOCTORS SAY ITS FROM THE MORPHINE(THAT WE STOPPED THIS MORNING) THE SURGEON IS VERY OPTIMISTIC AND BELIEVES ADRIAN SHOULD BE UP TO HIS GOAL IN A REASONABLE TIME FRAME !!!

L.A UPDATE

WELL SO FAR WE ARE IN L.A WE HAVE BEEN HERE SINCE SATURDAY ADRIAN IS EATING 4CC AN HR HE HAS NO OBSTRUCTION SO WE ARE JUST WAITING FOR THE DOCTORS BECAUSE THEY ARE NOT SURE WHAT THEY ARE GOING TO DO SO FAR IT HASN'T BEEN VERY GOOD WERE BOTH IRRITABLE AND UNCONFORTABLE BUT WE DID GET TO MEET LINDSAY LOHAN I WILL POST THE PIX LATER ADRIAN IS NOT IN THEM BECAUSE WITH ALL THE PEOPLE AND SECURITY HE GOT SCARED BUT SHE WAS VERY NICE !!!

Happy Hlloween

Happy Halloween 2007!!!!

Today was a pretty fun day even though we were at the hospital, they had a carnival, pumpkin painting, and all kinds of fun events. We should be leaving for L.A for sure with in the next two days Thanks to Dr Ursea finally things can get moving although I didnt want to go to L.A the thought of it helping Adrian get back on feeds I more than willing to go. He was a lion this year (Adrian The Great ) lol. Daddy and Mommy spent all morning getting Adrian dressed and showing him off to all of the nurses , then later he went to the carnival and got some pictures taken and Tiffany, Raquel , and Grandma came and saw him he was soo excited that at bedtime he wanted nooo part of it but all in all it was a good day and i have the most handsome little lion you'll ever see!!!!!!!!!!!!!!!!

October 25, 2007

SOOOOO Sorry I havent written in awhile but as of right now Adrian officially has an obstruction and we will be leaving for L.A on monday to have surgery!!!!we are hoping this will work and we will be on our way to getting off tpn !!!he recently started waving and babbling more he officially can say 3 words mama,dada, and ball . It is soo amazing and fun to see him progress more and more and just to play with him my little guy is getting so big he enjoys playing with his best buddy Darion I will be posting pix later on so keep checking !!!
Thx for taking time to be concerned
Linsy and Adrian

standing still

well sorry i havent updated but theres really nothing to update adrian is still in the hospital and still vomitting green bile at least 4 times a day the doctors are at a loss so they dont change anything he is recieving his feeds at 16ml an hr with no sign of home in the near future...if anyone knows why a child without a line infection, no flu, no bacterial overgrowth, would still be throwing up please let me know i am stumped!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!